| National Lupus
Associations or Federations
http://www.lupus.org/lupus/index.html
A superb site, very strong on patient information. In particular, we
like the segment on ‘Current Information’. The Lupus Foundation of America is
the largest organisation in the world dedicated to the improved detection of lupus through
increased awareness, alleviation of suffering through service and support, and ultimately,
the eradication of lupus through research.
http://www.arthritis.org/
This excellent site of the American Arthritis Foundation has a useful
search facility. There is a wealth of education material. It’s resource http://www.arthritis.org/resource/ room may
be useful for people hungry to know more about different aspects of arthritis and
lupus
http://www.arthritis.org/at/
The homepage of Arthritis Today, the bimonthly publication of the
Arthritis Foundation. You may read articles from it on the Net for free! The Sep-Oct 1998
issue contains information on SLE: http://www.arthritis.org/at/archive/1998/09%5F10/rs/lupus.asp.
http://www.geocities.com/HotSprings/Spa/4914/info.htm
A useful collection of patient pamphlets by Lupus UK.
http://www.lupuscanada.org/index.html
This is the web site of the Lupus Canada, a national voluntary
organisation. It has a good write-up of the disease, and has a strong collection of
articles about various aspects of SLE. The Primer of Immunology is very fun to read.
Back to the top
Research
http://omrf.ouhsc.edu/lupus/Frames.htm
Lupus Multiplex Registry & Repository (LMRR), sponsored by the
National Institute of Arthritis, Musculoskeletal and Skin Diseases maintains information
on families with two of more of their members who are suffering from SLE. Its aim is to
help researchers discover the gene for lupus to help find new and better treatments for
the disease.
Back to the top
Patient education about and around
lupus
http://www.quackwatch.com/
Billed as "Your Guide to Health Fraud, Quackery, and Intelligent
Decisions", this is a wonderful collection of articles that your sinseh or health
food dealer would not want you to read! There is information on acupuncture, health
supplements and traditional medicine. Before you try a special ‘cure’ for SLE,
read about it first and make a more informed decision.
http://ps.superb.net/smessick/lupmedsite.html#lupusrel
A motley collection of articles on SLE of uneven quality.
http://www.wellnessbooks.com/lupus/
Amazon Books stocks books on SLE that you can purchase online.
http://www.njc.org/MFhtml/SLE_MF.html
National Jewish Medical and Research Center, one of the most well-known
hospital in US, and is devoted to treating and studying respiratory, allergic and immune
system diseases, including lupus. This is its information page on SLE.
http://www.interlog.com/~plaw/LGirl/main.html
A great site for young people with lupus. The style and content will
appeal to younger patients and will encourage them to learn more about their own disease.
Back to the top
Personal experiences with lupus
http://members.xoom.com/LilWolff/mainindex.htm
A beautifully-designed and mystic website created by a lupus sufferer,
Jenny Braveheart.
http://www.hamline.edu/lupus/index.html
Read Ross Sonnenberg’s very personal account of his encounter with
lupus. Though dark, it ends in hope.
http://www.rainwaterpad.com/Lupus/
A well-informed lupus patient has put together this very informative
and useful site. She has compiled personal symptoms and impressions from other lupus
patients to produce a wonderful composite picture of lupus.
Back to the top
Links to links
http://www.mtio.com/lupus/l5index.htm
A superb webpage with hundreds of lupus-related sites. You can spend
hours surfing the links here.
Colorado Health
Net Lupus Centre
This provides general information, lists centres in Colorado and
support services.
- About Lupus
Erythematosus
- Disabilities Access in the UK
-
- The European
Lupus Erythematosus Federation
- Myriad links, primarily to European resources
Back to the top |